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What is the ePBI-Vit?

The ePBI-Vit is a tool for patients and their doctors that records patients' subjective assessment of the benefits of their treatment. It is based on the Patient Benefit Index for Vitiligo (PBI-Vit) and helps to set treatment goals and then check whether these goals have been achieved or not over time. It includes questions that measure the extent to which patients feel that their quality of life and symptoms have improved as a result of the therapy. This assessment tool therefore provides important information about patient satisfaction and perceived benefits. It can also be used for quality assurance and joint decision-making. The ePBI-Vit is available as a mobile application for Android and iOS devices and as a web-based online tool.

Validation of questionnaire

paper version: yes digital version: no

At the beginning of therapy, the patient completes a questionnaire about their treatment goals (PNQ: Patient Needs Questionnaire), consisting of 26 questions. On a 5-point scale ranging from “not at all” to “very much,” they rate how important the respective goals are to them or indicate whether they may not apply to them. At the end of therapy (or during its course), the patient completes the Patient Benefit Questionnaire (PBQ) and rates on a 5-point scale from “not at all” to “very much” the extent to which the treatment has helped to achieve the previously defined goals or whether they did not apply to them. The need prior to therapy (PNQ) and the benefit achieved through therapy (PBQ) are converted into a weighted index value, the Patient Benefit Index (PBI).

2) Benefits of treatment

Please enter here which treatment for vitiligo is currently being carried out (or has been carried out in the last 12 months):

Treatment: _________________ Since when?: ____________

O No treatment for vitiligo in the last 12 months (→ please continue on the next page!)

Please tick each of the following statements to indicate the extent to which the goals have already been achieved by the current treatment and thus the treatment has been beneficial for you. If a statement does not apply to you, e.g. because you did not experience any pain, please tick “not applicable” in the right-hand column.

Literature reference

Validation:
Augustin, M., Gajur, A., Reich, C., Rustenbach, S. & Schaefer, I. (2008). Benefit Evaluation in Vitiligo Treatment: Development and Validation of a Patient-Defined Outcome Questionnaire. Dermatology, 217(2), 101–106. https://doi.org/10.1159/000128992

Definition:
Augustin, M., Radtke, M. A., Zschocke, I., Blome, C., Behechtnejad, J., Schäfer, I., Reusch, M., Mielke, V. & Rustenbach, S. J. (2009). The patient benefit index: a novel approach in patient-defined outcomes measurement for skin diseases. Archives Of Dermatological Research, 301(8), 561–571. https://doi.org/10.1007/s00403-009-0928-8
Blome, C. & Augustin, M. (2010). Evaluation des therapeutischen Nutzens aus Patientensicht: Der Patient Benefit Index (PBI) als Beispiel für zielorientierte Präferenz- und Outcome-Messung. Gesundheitsökonomie & Qualitätsmanagement, 15(05), 236–240. https://doi.org/10.1055/s-0029-1245662

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Electronic Patient Benefit Index Vitiligo

ePBI-Vit

Quick and easy assessment of treatment benefits

What is the ePBI-Vit?

How to use the ePBI-Vit

1) Importance of treatment goals

2) Benefits of treatment

3) Calculation of PBI

4) View the results (example)

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The following versions of ePBI-Vit are available

The importance of measuring ePBI-Vit

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